What is the Difference between Pediatric Palliative Care and Hospice

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What is the Difference between
Pediatric Palliative Care and Hospice?

QUESTION	PALLIATIVE CARE	HOSPICE CARE
Who can receive this care?	Anyone with a serious illness or condition, regardless of life expectancy.	Someone with an illness or condition with a life expectancy measured in months, not years.
Can my child continue to receive treatments to cure their illness?	You may receive palliative care and curative care at the same time.	Treatments and medicines aimed at relieving symptoms are provided.
Does Medicare pay?	Some treatments and medications may be covered.	Medicare pays all charges related to hospice.
Does Medicaid pay?	Some treatments and medications may be covered.	In 47 states, Medicaid pays all charges related to hospice.
Does private insurance pay?	No, there is no ‘palliative care’ package, the services are flexible and based on the patient’s needs.	Most insurance plans have a hospice benefit.
Is this a package deal?	No, there is no ‘palliative care’ package, the services are flexible and based on the patient’s needs.	Medicare and Medicaid hospice benefits are package deals.
How long can my child receive care?	This will depend upon your care needs and the coverage you have through Medicare, Medicaid or private insurance.	As long as you meet the hospice’s criteria of an illness with a life expectancy of months not years.
What organization provides these services for children?	Hospitals Hospices Nursing Facilities Healthcare Clinics	Hospice organizations Hospice programs based out of a hospital Other health care organizations
Where are services provided for children?	Hospital / Home Home	Usually, wherever the child resides, in their home or hospital. Some hospices have facilities where children can live, like a hospice residence, or receive care for short-term reasons, such as acute pain or symptom management.
Who provides these services?	It varies. However usually there is a team including doctors, nurses, social workers and chaplains, similar to the hospice team.	A chaplain, volunteer, home health aide and others
Where can I find these services for my child?	Ask your children’s hospital about who provides pediatric palliative care services. To locate a children’s hospital in your area, visit www.childrenshospitals.net	To locate a hospice in your area that cares for children, call the National Hospice and Palliative Care Organizations’ HelpLine at 800.658.8898.

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